Members of the new Fairfield Brain Injury/Stroke Support Group discuss their experiences Thursday at the Victor Grange Hall in Fairfield. Shown are Lee Glynn of Skowhegan, at left; Jenn Williams of Fairfield, middle; and Beverly Busque, right, also of Fairfield. The fourth person is her boyfriend, Craig Mott, who sat in on the meeting. Amy Calder/Morning Sentinel

Lee Glynn recalled jumping out of bed Oct. 29, 2017, and heading into the bathroom to take a shower.

As soon as he turned on the light, he noticed his hand didnā€™t feel right.

ā€œI looked at myself in the mirror and realized one side of my face was numb,ā€ he said.

Glynn slumped to the floor and 45 minutes later an ambulance showed up at his rural home.

ā€œIt was not scary, it was not painful; I drifted in and out of consciousness,ā€ the 67-year-old Glynn said.

He was taken to an emergency room and then transferred to a Portland hospital, where he stayed in the intensive care unit for a week and then spent a month in acute rehab. Glynn had suffered a stroke and a brain injury.

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He told this story at the new Fairfield Brain Injury/Stroke Support Group which meets 3:30 to 4:30 p.m. Thursdays at Victor Grange Hall at 157 Oakland Road in Fairfield. The group was started by Beverly Busque, 61, of Fairfield, who suffered a stroke Sept. 29 and is learning to cope in her new, post-stroke world.

Itā€™s difficult. Busque said she will be going about her day and everything seems OK and suddenly there are ā€œhiccups.ā€

ā€œI will try to say yellow and itā€™ll come out eleven. I try to say spaghetti and I canā€™t say spaghetti. I drop things. Itā€™s frustrating because you donā€™t have a handle on your emotions. Right now Iā€™m having anger issues. I donā€™t smoke, I donā€™t drink. I eat healthy and then I have a stroke and it just pisses me off.ā€

At the first support group meeting Nov. 4, Glynn, of Skowhegan, Busque, and Jenn Williams, 39, of Fairfield, listened to each otherā€™s stories. They gave feedback, shared tips and swapped resources. The support group serves as a boost.

ā€œThereā€™s nothing like being in a room with people who understand what youā€™re going through,ā€ Williams said.

Williams was 33 and working 70 hours a week as an insurance agent when she had her stroke. Three years ago she decided to try grocery shopping by herself for the first time since her brain injury.

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ā€œItā€™s very hard for me ā€” lights, sounds, music,ā€ she said. ā€œIt was Sunday at 10 a.m. They decided to test the fire alarms, and I have episodes very similar to seizures. I freeze and canā€™t move or talk. Lights started flashing and sirens went off and I was just kind of crouched in between shelves, I couldnā€™t move. It was awful.ā€

The episode passed and Williams began to cry, she said. She approached the store manager to make a recommendation.

ā€œThis is my dream. I wish that the store would do a sensory hour at 7 a.m. on Tuesdays when the lights are dimmer, there are fewer people, no music and no dinging of registers. Now I go with my husband and I help him shop 10 or 15 minutes. I have trouble dividing my attention and dividing noises.ā€

Glynn recalled wanting to die when he was released from the hospital in a wheelchair after his stroke, unable to walk, eat or dress himself.

ā€œYou have no idea what a dark place youā€™re in. Desperation and anger.ā€

It wasnā€™t until he found a support group in Brewer eight months after his stroke that he began to heal, both physically and emotionally.

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ā€œWhen I walked out of that meeting, I felt the weight of the world had lifted off me,ā€ he said.

Glynn now is co-chairman of the Acquired Brain Injury Advisory Council of Maine and speaks to support groups. He undergoes physical therapy, swims three days a week, and improves every day. His life, he said, is better than it was before his stroke.

ā€œI have hope, and if you have hope anything is possible. I tell people I want to be a hope broker.ā€

Busque encourages anyone who wants to join the group to just show up, email her at beverlybusque57 @gmail.com or call her at 649-3053.

Amy Calder has been a Morning Sentinel reporter 33 years. Her columns appear here Saturdays. She may be reached at acalder@centralmaine.com. For previous Reporting Aside columns, go to centralmaine.com.

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